ROCHESTER AND ZAMBIA AND MALAWI
People
Seizure disorders can be caused by many medical conditions, and they’re more common in the developing world. Neurological and psychological disorders account “for about a quarter of the global burden of disease, and much of that is in developing countries,” says Birbeck.
“There’s a disconnect between where disease is and where experts are,” she says.
She works to redress that disconnection, providing clinical care and conducting research. As a result, more than 3,000 patients have received treatment they otherwise wouldn’t have. And she has helped make changes to Zambia’s national policy that could help many more.
She’s also working to build up the resources and networks necessary to conduct clinical trials in Africa, and to create education and training programs for health care providers and researchers. She’s involved in cerebral malaria research in Malawi and Uganda, and mentors postgraduates and junior faculty carrying out research in Zambia, Malawi, Kenya, and South Africa.
While creating access to specialty health care is critical, Birbeck finds that tackling stigma and misinformation is also key. The difficulties are complex. There aren’t only problems procuring a diagnosis, finding treatment options, and getting access to medication. Open flames from fires and bodies of water also pose significant threats. “Burns and drowning,” she says, “are two of the most common causes of death of people with epilepsy in developing countries.”
In the years that Birbeck has been traveling to Africa, she has seen “slow inroads” in Zambia for treating epilepsy, with improvements in general services and better access to information about the disease. Meanwhile, a “roll back malaria” campaign has transformed the incidence of malaria seizures in Zambia, though Malawi hasn’t seen such progress. Efforts to deal with malaria haven’t kept pace with those for epilepsy, but there have advances. “I’m not convinced malaria eradication is likely, but there are improvements in infection rates,” she says.
Overall, though, Birbeck sees reasons for optimism. “There’s much more expertise in-country,” she says. “Junior people are coming back as senior
people, and staying.”
Their efforts are an amalgam of teaching people about seizures and making care available to them. Both are essential, she says, and her research and clinical care are different but interrelated efforts to improve the lives of people with epilepsy and other seizure disorders. “We’re educating the public, but we also work with the health care structure to ensure there are providers and treatment,” she says.- 3 alumni living in Malawi
- 3 alumni living in Zambia
- 1 student from Malawi in fall 2015
- 7 students from Zambia in fall 2015