Thriving while living with fetal alcohol spectrum disorders (FASD)
Fetal alcohol spectrum disorders are a pressing public health problem—and the University is home to one of only two specialty diagnostic clinics in New York state.
Medical Center to lead first gene therapy study for Batten disease
The University will serve as the lead study site in the US for an experimental treatment for CLN5 Batten disease, a rare and fatal neurodegenerative disorder.
First mobile app for caregivers of children with FASD reaches trial stage
After two-and-a-half years of development and testing, the first promising results are in for an app designed to help caregivers of children with fetal alcohol spectrum disorder.
Self-care linked to greater confidence in parents of children with FASD
A Rochester study is the first to describe caregiver strategies for self-care and the obstacles and barriers parents face in raising children struggling with developmental, cognitive, and behavioral problems associated with fetal alcohol spectrum disorders.