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Tag: developmental disorders

Thriving while living with fetal alcohol spectrum disorders (FASD)

Thriving while living with fetal alcohol spectrum disorders (FASD)

November 5, 2021

Fetal alcohol spectrum disorders are a pressing public health problem—and the University of Rochester is home to one of only two specialty diagnostic clinics in New York state. Here, Rochester psychologists are making the case for a new approach to treating FASD.

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Medical Center to lead first gene therapy study for Batten disease

Medical Center to lead first gene therapy study for Batten disease

November 4, 2021

The University will serve as the lead study site in the US for an experimental treatment for CLN5 Batten disease, a rare and fatal neurodegenerative disorder.

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First mobile app for caregivers of children with FASD reaches trial stage

First mobile app for caregivers of children with FASD reaches trial stage

April 7, 2020

After two-and-a-half years of development and testing, the first promising results are in for an app designed to help caregivers of children with fetal alcohol spectrum disorder.

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Self-care linked to greater confidence in parents of children with FASD

Self-care linked to greater confidence in parents of children with FASD

February 3, 2020

A Rochester study is the first to describe caregiver strategies for self-care and the obstacles and barriers parents face in raising children struggling with developmental, cognitive, and behavioral problems associated with fetal alcohol spectrum disorders.

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