In June, Justin White ’00 traveled with his wife, Kate, and their two sons, Caiden and Teddy, from their Connecticut home to Rochester—a trip the family has made more than 30 times since May 2022.
Four years ago, six-year-old Teddy was diagnosed with the rare genetic disorder Duchenne muscular dystrophy. With no cure for the condition, his doctors suggested gene therapy. The Whites chose to have the treatment done at the University of Rochester Medical Center, due to the strengths of its Clinical Research Center in conducting experimental gene therapy trials. Teddy completed the most recent phase of his trial in June and was granted his wish to mark the occasion: a trip to the top of Rush Rhees Tower.